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Showing posts from February, 2012

6 months old!

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Another month has gone by and we're now at the halfway mark! In just 6 months, my baby will be a year old! Oh my!! AK is such a sweet boy. He continues to be such a fun addition to our family. It's hard to remember what life was like before he was here. (I do know I slept more, but he's worth it.) AK sitting tall (new skill we're pretty good at) He loves grabbing at his feet and pulling socks off.  He also thinks it's funny to stick out his tongue. Nice and clean after a bath Trying some sweet potatoes. I think they are a hit. Riding in the wagon, being pulled by AC Trying out the rocking chair. All dressed up for church Sweet blue eyes! Enjoying some time outside during our mild winter. Precious boy! Happy baby! This month: *He is wearing some 6-9 month clothes, some 6-12 month clothes, and a few 9-12 month clothes. *He is still wearing size 3 diapers. *Not sure how much he weighs. My guess is a little ov...

EEG and MRI

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We went to our local children's hospital last Thursday and Friday to do a 24 hour EEG and MRI. The main reason in doing this was to rule out Landeu Kleffner Syndrome and seizures occuring in her sleep. Some of you might remember that we tried to do a sleep-deprived EEG almost a year ago. That was a disaster. She was upset the entire time and came no where close to falling asleep. I was quite nervous about staying in the hospital. I probably went through 10 different scenarios of how it would go and almost called to cancel the whole thing once or twice. I am thankful for the prayers of several dear family members and friends. EK did so much better than I could have hoped for. It was still hard, don't misunderstand me. But she didn't cry the whole time. She actually fell asleep that night (after calling the nurse's station at least a half dozen times...why would they put the buttons on the inside of a children's bed?) and slept all night. I am thankful Keith w...

3 year anniversary

I have been reflecting the past couple days about how our lives changed dramatically 3 years ago. It's the anniversary of when we got EK's autism diagnosis. Although we knew it was coming, it was hard to hear. I remember feeling so overwhelmed by all the information out there and having no idea where to start. By God's grace, the Lord has brought us through some difficult times and taught me a lot. My faith is stronger because of EK's autism. Three years after the diagnosis, I still don't like autism. I would be elated if God allowed EK to wake up tomorrow without autism, but I'm not angry with Him because He hasn't chosen to heal my daughter. I continue to pray that He will heal her and at least allow her to talk again. I pray for wisdom and discernment as we make decisions to try to do what's best for EK. Autism has made me rely on His strength to make it through some days, ok, most days. Autism has changed our family and our marriage. It's change...

Laughter!

AK is really laughing these days. It's contagious! :) Wanted to share a little clip of the sweet sound. He thought it was so funny to try and get his sister.

The RIGHT Things to Say to Parents of Special Need...

I posted this on my facebook wall yesterday and I wanted to give those of you who aren't on facebook an opportunity to see this. Don't feel bad if you can relate to saying some of the things she first says. This article will equip you when the next opportunity arises. I know I didn't always know what to do around kids with special needs. Now, I love when people make an effort to include EK! She may not respond, but know that she understands when people are being kind to her. :) The Fragile X Files: The RIGHT Things to Say to Parents of Special Need... : I was volunteering over at Aliza's school the other day during lunch, and I noticed that the special needs kids all sit together at one tabl...